Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability Aims

1. To probe current guidelines, evidence and recommendations on post-diagnostic care for people with intellectual disability and dementia nationally and internationally.

2. To identify current recommendations of best practice in post-diagnostic dementia supports care nationally and internationally.

3. To identify the post-diagnostic supports currently available to people with intellectual disability, at a national level, upon receiving a diagnosis of dementia.

4. To understand the current lived experience of post-diagnostic supports for people with intellectual disability and their families following a dementia diagnosis.

5. To understand what post-diagnostic dementia supports people with intellectual disability and their families would like to have.

6. To develop detailed descriptions of exemplars of best practice in Ireland from ID services with dedicated post-diagnostic supports and of post-diagnostic care provided by general dementia services

7. To develop usable, useful and practical best practice guidelines for post-diagnostic support for people with an intellectual disability.