Biography
Éilish Burke RGN RNID BNS MSc. PhD. completed her PhD in March 2016, during her studies she achieved a number of awards including Postgraduate of the year 2016 and was appointed as the Ussher Assistant Professor in Ageing and Intellectual Disability, Trinity College Dublin in September 2016. Éilish originally trained as a general nurse and through her volunteer work with the Special Olympics she developed an interest in intellectual disability. She trained as a Registered Nurse Intellectual Disability and worked in clinical practice for over 25 years. Éilish completed her Masters in Trinity and joined the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) team as a research assistant in 2010. Éilish served as Project Manager from 2011-2016, whilst continuing to play an integral role in IDS-TILDA she is now the Associate Professor in Ageing and intellectual disability in the School of Nursing and Midwifery with her research is based with the Trinity Centre for Ageing and Intellectual Disability (TCAID). Her research interests include bone health and osteoporosis, inclusionary methods of healthcare screening and healthcare engagement, accessible health promotion and promoting research involvement of people with intellectual disability. She has been a successful collaborator and PI on a number of grants including HRB, EIT and IRC. She designed an accessible format to engaging people in health assessments in the IDS-TILDA study, further developing this into a MOOC - Improving Health Assessment Among People with Intellectual Disability - which has now attracted more than 7500 learner. She has also developed an accessible online programme for health promotion - Get Wise about your Health - and was the team lead in the development of the planning tool for end of life, - Glancing Back Planning Forward. Her work has attracted much public recognition and is cited as an exemplar in the Missing Billion Strategy, an initiative aimed at developing inclusive health systems worldwide. She was awarded the International Association for Research on Service Learning and Community Engagement (IARSLCE) Diversity, Equity and Inclusion Award in recognition of her research work. Dr. Burke is leading the physical health theme of TCAID and is guiding the future focus of this theme. Administratively Dr. Burke is the Associate Director of TCAID and module lead on a number of modules on the Masters in Ageing Health and Wellbeing in Intellectual Disability, which is a unique course she designed, developed and launched in 2018. The programme is research led and under pinned by the IDS-TILDA study. Dr Burke is a committed teacher and has been involved in education throughout her career. Her contribution to education and the profession has included co-ordination and development of modules and courses at undergraduate and post graduate level and she is currently the external examiner at Queens University Belfast.
She is a member of the International Association for the Scientific Study of Intellectual and Developmental Disability, as well as the International Osteoporosis Foundation and the Irish Osteoporosis Society. She sits on the Quality Improvement HSE working group, the HSE Affinity intellectual disability working group, the Trials Steering Committee of the Matilda Project Ulster University and the Camphill Communities of Ireland Ethics committee and is the academic advisor to the Positive Ageing Strategy Committee, Gheel Services. Dr Burke is also a member of the Special Olympics International Global Curriculum Advisory Panel. In response to the COVID19 pandemic Dr Burke lead the design of an online educational programme for carers in intellectual disability services on recognition and assessment of COVID 19 among those with intellectual disability in collaboration with the HSE and OMNSD.
Publications and Further Research Outputs
Peer-Reviewed Publications
Smith, K.J. and Gupta, S. and Fortune, J. and Lowton, K. and Victor, C. and Burke, E. and Carew, M.T. and Livingstone, E. and Creeger, M. and Shanahan, P. and Walsh, M. and Ryan, J.M., Aging Well With a Lifelong Disability: A Scoping Review, Gerontologist, 64, (9), 2024
A. Gorman, M. Odalovi",, P. McCallion, A. Paul, É. Burke, M. MacLachlan, M. McCarron, M. C. Henman, M. Moran, J. O"Connell, R. Shankar, C. Ryan & M. O"Dwyer, Comparing self-report medication data from a longitudinal study on intellectual disability and national dispensing records, Journal of Intellectual Disability Research, 69, (1), 2024, p103 - 111
Odalovic, M., Gorman, A., Paul, A., McCallion, P., Burke, E.A., MacLachlan, M., McCarron, M., Henman C, M., Moran, M., O"Connell, J., Walsh, M., Shankar, R., Ryan, C. & O"Dwyer, M., Psychotropic medicines' prevalence, patterns and effects on cognitive and physical function in older adults with intellectual disability in Ireland: longitudinal cohort study, 2009-2020, BJPsych Open, 10, (2), 2024
Synnott Faria, I., McCarron, M., McCallion, P., Burke, EA and McCausland, D., Building circles of support: a project demonstrating case studies of good practice for people with intellectual disabilities, Trinity Health and Education International Research Conference (THEconf2024), Trinity College Dublin, 5-7th March 2024, 2024
Lynch, L. and McCarron, M. and McCallion, P. and Burke, E., An exploration into self-reported inactivity behaviours of adults with an intellectual disability using physical activity questionnaires, Journal of Intellectual Disability Research, 2024
Fitzpatrick, DJ., McCallion, P., McCarron, M., and Burke, EA., Constipation severity and its progression in older people with an intellectual disability in Ireland: A longitudinal study., Trinity Health and Education International Research Conference (THEconf2024):, Trinity College Dublin, March 6th - 7th, 2024
Corrigan, S., McCallion, P., McCarron, M. and Burke, EA., The impact of menopause on the mental health of women with an intellectual disability: a scoping review, Trinity Health and Education International Research Conference (THEconf2024), Trinity College Dublin, 2024
Eilish King, Dr Katie Cremin, Prof Philip McCallion, Prof Mary McCarron, Prof Éilish Burke, Exploring the utility of the Adult/Adolescent Sensory Profile for use with adults ageing with intellectual disabilities, Journal of Intellectual Disability Research, IASSIDD World Congress 2024, Chicago, USA, August 4th-8th 2024, 68, (7), Wiley, 2024, pp670 - 670
King, E., Cremin, K., McCallion, P., McCarron, M. and Burke, EA., Supporting adults ageing with intellectual disabilities to complete measures of sensory processing, THEConf2024 Trinity Health and Education International Research Conference, Dublin, ireland, 5-7 March 2024, 2024
O"Connell, J., Gorman, A., Burke, É., Deb, S., Henman, M. C., McCallion, P., McCarron, M., Mullally, T., Mulryan, N., O'Dwyer, M. & Ryan, C., OPTIMA-ID: development and validation of a medicine optimization tool for older adults with intellectual disability., Expert Review of Clinical Pharmacology, 17, (9), 2024, p837 - 851
Power, A., McCarron M., McCallion, P., and Burke, EA., Bone Health Screening in People with Intellectual Disability, Trinity Health and Education International Research Conference (THEconf2024):, Trinity College Dublin, 5-7th March, 2024
Burke, E. A., Carroll, R., O'Dwyer, M., Walsh, J. B., McCallion, P., & McCarron, M., Ageing, osteoporosis, and intellectual disability; risks differ, and diagnosis can be missed, British Journal of Learning Disabilities, 1, (15), 2024
Judy Ryan, Overweight and ovesity in older adults with an intellectual disability, Trinity College Dublin, 2024
Eilish Burke, Empowering Healthcare: A Transformative Odyssey from Research to Practice in Intellectual Disability Health Assessment, Improving Health Assessment for People with Intellectual Disability: MOOC, School of Nursing adn Midwifery, 2024
Eilish King, Dr Katie Cremin, Prof Philip McCallion, Prof Mary McCarron, Prof Éilish Burke, Exploring patterns of sensory processing amongst adults ageing with intellectual disabilities, IASSIDD World Congress 2024, Chicago, USA, August 5-8th 2024, 2024
Lynch, L., McCarron, M., McCallion, P. & Burke, E., To Identify and Compare ActivPAL Objectively Measured Activity Levels With Self-Reported Activity From the International Physical Activity Questionnaire in Older Adults With Intellectual Disability, Journal of Applied Research in Intellectual Disabilities, 38, (1), 2024
Lynch, L., McCarron, M., McCallion, P. and Burke, E. A., A longitudinal exploration of self-reported TV behaviours as a surrogate for sedentary behaviour in older adults with an intellectual disability from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA) study, Journal of Intellectual Disabilities, 2024
Lynch, L., McCarron, M., McCallion, P. and Burke, EA., To identify and compare objectively measured and self-reported activity levels among older adults with an intellectual disability., Trinity Health and Education International Research Conference (THEconf2024):, Trinity College Dublin, 5-7th March 2024, 2024
Odalovic, M., Gorman, A., McCallion, P., Burke, E., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M., Prevalence and pattern of psychotropic use among older adults with intellectual disabilities in Ireland: What"s changed between two time points, 2010 and 2020?., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023
McDermott, S., McCarron, M., Burke, EA., McCallion, P. and O'Donovan, MA., Enabling older adults with intellectual disability to become physical activity leaders in their community: Pilot study, Journal of Intellectual Disability Research, 2023
Fitzpatrick, D., McCallion, P., McCarron, M. & Burke, E., Epidemiology of constipation and its associated risk factors in an ageing population of people with intellectual disability in Ireland: A cross-sectional study., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March., 2023
Darker CD, Mullin M, Doyle L, Tanner M, McGrath D, Doherty L, Dreyer-Gibney K, Barrett EM, Flynn D, Murphy P, Ivers JH, Burke E, Ryan M, McCarron M, Murphy P, Sheils O, Hevey D, Leen A, Keogh L, Walls B, Bennett AE, Petersen F, Nolan A, Barry JM., Developing a health promoting university in Trinity College Dublin-overview and outline process evaluation, Health Promotion International, 38, (4), 2023, p1 - 14, p1-14
Chronic health among those with intellectual disability in, editor(s)Fintan Sherrin and Carmel Doyle , Intellectual Disabilities: Health and Social Care Across the Lifespan, Springer, Spreinger, 2023, pp121 - 146, [Burke, EA., O'Dwyer, M., Maes-Festen, D. and Oppewal A.]
Kelly, K., Haigh, M., McCarron, M., McCallion, P., Burke, E-A. & Wormald, A-D., Moral distress in carers for people with an intellectual disabilitywho died during the COVID-19 pandemic, a template analysisextending the Barlem and Ramos model of moral distress., Journal of Applied Research in Intellectual Disabilities, 2023, p1 - 9
Abdullah, Z., Paul, P., Pavithra, P., McCallion, P., McCarron, M. & Burke, E., The prevalence of epilepsy and osteoporosis in those with intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023
Fitzpatrick, D., McCallion, P., McCarron, M., and Burke, EA., Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study., Journal of Intellectual & Developmental Disability, 2023
Odalovic, M., Gorman, A., McCallion, P., Burke, E., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M., Psychotropic drug use among adults with intellectual disabilities in Ireland: trend analysis for 10-year period., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023
O'Brien, F., McCallion, P., Ryan, C., Paul, A., Burke, É., Echiverri, S., & McCarron, M., Does Arterial Stiffness Predict Cardiovascular Disease in Older Adults With an Intellectual Disability?., Journal of Cardiovascular Nursing, 2023
Fleming S., Burke E., Doyle C., Henderson K., Horan P., Byrne K., Keenan P. , Ensuring effective communication when undertaking a systematic health assessment, Learning Disability Practice, 2023
Gnann, U., Ryan, C., Paul, A., McCarron, M., McCallion, P.. & Burke, E., A cross-sectional exploration of the prevalence and impact of urinary incontinence among ageing adults with intellectual disability in Ireland., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 2023
Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of life and people with intellectual and developmental disability: Contemporary issues, challenges, experiences and practice, Switzerland, Palgrave Macmillan Cham, 2022, pp235 - 264, [McCarron, M., Kelly, K., McCallion, P., Burke, E., Haigh, M. and Wormald A.]
McCarron, M., McCausland, D., McGlinchey, E., Bowman, S., Foley, M., Haigh, M., Burke, E. & McCallion, P., Recruitment and retention in longitudinal studies of people with intellectual disability: A case study of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Research in Developmental Disabilities, 124, 2022
Louise Lynch, Mary McCarron, Jessica Eustace-Cook, Philip McCallion, Eilish Burke, Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review, Journal of Intellectual Disabilities, 2022
Burke, EA., Fleming, S., Doyle, C., Henderson, K., Keenan, P., Horan, P., and Byrne, K., Using verbal and non-verbal communication to support people with learning disability, Learning Disability Practice, 2022
Lynch, L., McCarron, M., Eustace-Cook, J., McCallion, P. & Burke, E. , Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review, Journal of Intellectual Disabilities, 2022, p1 - 27
Gorman, A., Odalovi", M., McCallion, P., Burke, EA., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M, Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities: study protocol, HRB Open Research, 5, (71), 2022
Chen, S., McCallion, P., McCarron, M. and Burke, E., A descriptive quantitative exploration of the factors associated with mobility limitations in adults with intellectual disability in Ireland, Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin., 2022
Ganley, B., McCausland, D., McCallion, P, McCarron, M. and Burke, E., Choice and people with an intellectual disability as they age., Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin, 8-10 March 2022, 2022
O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E-A. & McCarron, M., Hypertension in Older Adults. The prevalence, awareness, treatment and control of hypertension in older adults with an Intellectual Disability: a cross sectional study., JBI Evidence Synthesis , 20, (7), 2022
Burke, E., McCallion, P., McCarron, M. and Foran, S., Falls and fear of falls among older adults with intellectual disability, Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin, 8-10 March 2022, 2022
Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., & McCarron, M., Exploring a Social Conceptualisation of Frailty among Older Adults with an Intellectual Disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021
Burke, E., Carroll, R., Walsh, J., McCallion, P., & McCarron, M., An exploration of the association between bone health and hand grip strength among older men with intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021
Reilly, E., Carroll, R., McCallion, P., McCarron, M., & Burke, E., The impact of ageing for people with down syndrome over the age of 40-years living in Ireland. A 10-year longitudinal follow-up, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021
Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P and McCarron M., Factors associated with the progression of deficit accumulation frailty among adults with an intellectual disability: a systematic review revealing research gaps, HRB Open Research, 2021
Murphy, E., Dennehy, H., Bakker, A., Oppewal, A., Bowman, S. and Burke, E., Promoting engagement during a pandemic, advancing the health andwellbeing of individuals with intellectual disabilities, IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 2021, IASSIDD
Chen, S., McCarron, M., McCallion, P. and Burke, E., The use of Timed up and Go: Identifying mobility issues amongadults with intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371
McCarron, M., Allen, A., McCausland, D., Haigh, M., Luus, R., Bavussantakath, F.R., Sheerin, F., Mulryan, N., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey., HRB Open Research, 4, (95), 2021
Donohoe, N., McCarron, M., McCallion, P. and Burke, E., A novel approach to engaging people with intellectual disability as contributors in research, IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 2021, IASSIDD
Lynch L, McCarron M, McCallion P and Burke E., Sedentary behaviour levels in adults with an intellectual disability: a systematic review and meta-analysis, HRB Open Res, 4, (69), 2021
O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E., and McCarron, M., Reflections about hypertension in older adults with an intellectual disability: the importance of Home Blood Pressure Monitoring (HBPM)-Authors' reply,, European Journal of Cardiovascular Nursing, 20, (4), 2021, p391
Molloy, R., McCarron, M., McCallion, P. and Burke, E., A longitudinal exploration of the foot health status of older adults with intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371
Burke, E., Bakker, A., Dennehy, H., Bowman, S. and Oppewal, A., Get Wise about your health, developing inclusive online education , IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 2021, IASSIDD
Lynch, L., McCallion, P., McCarron, M. and Burke, E., Examining the sedentary behaviour levels among older adults withintellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371
Burke E, Dennehy H, Bakker A, Bowman S, Murphy E, Maes-Festen D., McCallion, P., McCarron, M, and Oppewal A., The Methodological Approach to the Co-Creation of Online Health Education with and for Individuals with Intellectual Disability, Global Journal of Intellectual & Developmental Disabilities, 7, (5), 2021
Ryan, J., McCallion, P., McCarron, M., Luus, R., Burke, E.A., Overweight/obesity and chronic health conditions in older people with intellectual disability in Ireland, Journal of Intellectual Disability Research, 2021
Lynch, L., McCarron, M., McCallion, P. & Burke, E.,, Sedentary behaviour levels in adults with an intellectual disability: a systematic review, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', 9th - 11th March, 2021
Burke, E., Bakker, A., Dennehy, H., Bowman, S and Oppewal A., Including People with intellectual disability in online health education, IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th -8th July, 2021, IASSIDD
Dennehy, H., Oppewal, A., Bowman, S., A. Bakker and Burke, EA, Get Wise about your health; supporting people with intellectual disability to be health savvy, Transforming Healthcare in a Changing World: New Ways of Thinking and Working, Trinity College Dublin, 9-11th March 2021, 2021
O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E. and McCarron M., The prevalence, awareness, treatment, and control of hypertension in older adults with an intellectual disability in Ireland: a cross sectional study, European Journal of Cardiovascular Nursing, 20, (4), 2021, p315 - 323
McCarron, M., McCausland, D., Luus, R., Allen, A., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of coronavirus disease 2019 (COVID-19) on older adults with an intellectual disability during the first wave of the pandemic in Ireland, HRB Open Research, 4, (93), 2021
McCarron, M., McCallion, P., Burke, E., & Timmins, F., End of Life Care for People with an Intellectual Disability a Qualitative Exploration of Staff Carers' Experiences, BMC Palliative Care, 2021
Burke. E., Carroll, R., Ding, AW., Yaman, M., Walsh, JB., McCallion P and McCarron M., Men's Bones Matter Too, a Cross Sectional Study Examining Bone Health among Men with Intellectual Disability in Ireland., OBM Geriatrics , 5, (4), 2021
Molloy, R., Burke, E., McCallion, P., & McCarron, M., A descriptive quantitative exploration of the foot health status of older adults with intellectual disability in Ireland over 10 years., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021
McDermott, S., O'Donovan, M-A., McCarron, M., McCallion, P., Lynch, L., & Burke, E., Training Older Adults with intellectual disabilities (ID) as Physical Activity leaders 2020 (PPALS2), Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021
Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., and McCarron, M., Social frailty among older adults with an intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371
Burke, EA., Walsh, JB., McCalion, P. and McCarron, M., A descriptive examination of the link between men with intellectual disabilities, bone health and grip strength., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, March 2020, 2020
Martine Smith, Beatrice Manduchi, Éilish Burke, Rachael Carroll, Philip McCallion, Mary McCarron, Communication difficulties in adults with Intellectual Disability: Results from a national cross-sectional study, Research in Developmental Disabilities, 97, 2020, p103557
O'Donohoe, N., McCallion, P., McCarron, M and Burke E., Engaging people with intellectual disability in research, a novel approach., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020
Smith, M., Manduchi, B., Burke, E., Carroll, R., McCallion, P. & McCarron, M., Communication difficulties in adults with Intellectual Disability: Results from a national cross-sectional study, Research in Developmental Disabilities, 97, (103557), 2020, p1-12
Manduchi B, Walshe M, Burke E, Carroll R, McCallion P, McCarron M , Prevalence and risk factors for choking in adults with intellectual disability: Results from a national cross sectional study. , Journal of Intellectual and Developmental Disability , 46, (2), 2020, p126 - 137
Burke, EA., Bowman, S., Murphy, E., Oppewal, A., McCallion, P., and McCarron M., Get Wise About Your Health, Supporting people with intellectual disability to be health savvy: Sharing preliminary findings from public engagement and involvement in research , Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020
Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., & McCarron, M., Factors associated with frailty among older adults with an intellectual disability: a systematic review of the literature, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020
O' 'Connell, J., Burke, E., McMahon N, McCallion, P., McCarron, M, Henman, M., O'Dwyer M, Medication Burden and Frailty in Older Adults with Intellectual Disability: An Observational Cross-Sectional Study, Pharmacoepidemiology and Drug Safety, 29, (4), 2020, p482 - 492
Burke, EA.and McCarron, M., The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) - Ageing and intellectual disability , International Winter School, School of Nursing and Midwifery, Trinity College Dublin, January 6th - 17th , 2020, School of Nursing and Midwifery
Burke, EA., Bowman, S., McCallion, P., McCarron, M. and Gallagher, S., The use of massive open online courses to improve the healthcare service for adults with intellectual disability, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020
McDermott, S., O'Donovan, M-A., McCarron, M., McCallion, P., Lynch, L., & Burke, E., Older adults with intellectual disabilities (ID) as physical activity leaders in Ireland and Spain, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020
Burke, EA., Walsh, JB., McCallion, P., and McCarron, M., Making Reasonable Adjustment to Enable and Support People with Intellectual Disability Engage in Objective Health Measures in a Research Study; The Health Fair In The Intellectual Disability Supplement To The Irish Longitudinal Study On Ageing., Inclusion, 2020
Burke É, Carroll R, O'Dwyer M, Walsh JB, McCallion P, McCarron M., Quantitative examination of the bone health status of older adults with intellectual and developmental disability in Ireland: a cross-sectional nationwide study. , BMJ Open, 2019
O'Connell J, Henman MC, Burke E, Donegan C, McCallion P, McCarron M, O'Dwyer M, Association of Drug Burden Index with Grip Strength, Timed Up and Go and Barthel Index Activities of Daily Living in Older Adults with Intellectual Disabilities: An Observational Cross-sectional Study, BMC Geratrics, (173), 2019, p1 - 21
Burke, E., When someone with IDD becomes frail, formal and informal carers need support to., Journal of Intellectual Disability Research, IASSIDD World Congress, Scotland, July 2019, 63, (7), 2019
Important Physical Health Issues in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp27 - 52, [Burke, E., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P & McCarron M.]
Claire O'Dwyer; Martin Henman; Mary Mc Carron; Eva O'Leary; Philip McCallion; Eilish Burke; Juliette O'Connell; Maire O'Dwyer, Prevalence and patterns of antipsychotic use and their associations with mental health and problem behaviours among older adults with intellectual disabilities, Journal of Applied Research in Intellectual Disabilities , 32, (4), 2019, p981 - 993
Sheerin, F., Fleming, S., Burke, E., Byrne, K., Cleary, M., Doyle, C. and Keenan, P., Exploring mental health issues in people with an intellectual disability, Learning Disability Practice, 2019
Burke, EA., Carroll, R., O'Dwyer, M., Walsh, JB., McCallion, P., McCarron, M., A quantitative examination of the bone health status of older adults with intellectual and developmental disability in Ireland: a cross sectional nationwide study., British Medical Journal, 2019
Burke, EA., McCallion, P., McCarron, M., Bowman, S. and Gallagher, S., The use of massive open online courses to improve the healthcare service for adults with intellectual disability, THE WORLD CONGRESS OF THE INTERNATIONAL ASSOCIATION FOR THE SCIENTIFIC STUDY OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, Glasgow, August 2019, 2019
Al Mutairi HK, O'Dwyer M, McCarron M, McCallion P, Burke E, Henman MC., Laxative use among older adults with intellectual disability: A cross-sectional observational study, International Journal of Clinical Pharmacy, 42, 2019, p88 - 99
Burke, EA., Carroll, R., Walsh, JB., McCallion, P. and McCarron, M., Bone health, grip strength and older men with intellectual disability , THE WORLD CONGRESS OF THE INTERNATIONAL ASSOCIATION FOR THE SCIENTIFIC STUDY OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, Glasgow , August 2019, 2019
McCallion, P., McCarron, M., & Burke, E. , Irish findings on quality in life and death for people with ID. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019
Burke, E, A., McCarron, M., McCallion, P., Bowman, S, Building Inclusive Communities: Learning from the world, Involving Older Adults in Research - Lessons from 10 Years of IDS-TILDA, USA, November 2018, 2018
Ouellette-Kuntz, H., Martin, L., Burke, E., McCallion, P., McCarron, M., McGlinchey, E., Sandberg, M., Schoufour, J., Shooshtari, S., Temple, B, How best to support individuals with IDD as they become frail: Development of a Consensus Statement, Journal of Applied Research in Intellectual Disabilities , 32, (1), 2018, p35 - 42
Burke, EA., Walsh, JB., McCallion, P. and McCarron, Engaging adults with intellectual disability (ID) in objective measurements for the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing , SPHeRE Network Conference , RCSI, Dublin, 11th Jan 2018, 2018
Burke, EA., Carroll, R., O'Dwyer, M., Walsh, JB., McCallion, P and McCarron, M., Osteoporosis and People with Down Syndrome: A Preliminary Descriptive Examination of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing Wave 1 Results, Health, 10, (9), 2018, p1233 - 1249
O'Dwyer, C., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M., McCarron, M., Prevalence and associated factors of problem behaviours among older adults with intellectual disabilities in Ireland, Research in Developmental Disabilities, 80, 2018, p192 - 204
O'Connell, J., Burke, E., Mulryan, N., O'Dwyer, C., Donegan, C., McCallion, P., McCarron, M., Henman, M., O'Dwyer, M, Drug Burden Index to Define the Burden of Medicines in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study , British Journal of Clinical Pharmacology, 84, 2018, p553 - 567
Overview of the Important Physical Health Concerns in, editor(s)Vee P. Prasher and Matthew P. Janicki , Physical Health of Adults with Intellectual Disabilities, Springer Nature, 2018, [Burke, E.A., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P. and McCarron, M]
Keenan P.M., Fleming S., Horan P., Byrne K., Burke E., Cleary M., Doyle C. & Griffiths C., , Urinary continence promotion and the person with an intellectual disability,, Positive Choices - Heroes and Champions deserve to live a life free from fear, School of Nursing and Midwifery, Trinity College Dublin, University of Dublin., 19th April 2018, edited by Positive Choices , 2018, ppdoi: 10.7748/ldp.2018.e1878
Horan, P., Fleming, S., Cleary., Burke, E., Doyle, C., Byrne, K., Griffiths, G., Keenan, P, 'Sweet Dreams': An Evidence Based Approach to Effective Sleep Hygiene Maintenance for People living with an Intellectual Disability, Learning Disability Practice, 2018
Burke, E., McCallion, P., McCarron, M, "Men's Bones Matter Too; Fracture risk and associated osteoporosis among older men with intellectual disability, Health SIRG 2017 , Belfast, 19th June, 2017
O'Connell, J., Henman, M., McCarron, M., McCallion, P., Burke, E., O'Dwyer, C., Mulryan, N., Donegan, C., O'Dwyer, M. , Drug Burden Index and Physical Function in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study, Bridging the gap: From evidence to improved health from persons with intellectual and developmental disabilities Health SIRG, Belfast Ireland, 2017, 2017
Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017
McCarron, M., Burke, E., White, P., O'Dwyer, C., Ryan, K., O'Farrell, J., McCallion, P., "He'd mind you, you mind him": Experiences of end of life care for people with an intellectual disability as perceived by staff carers., School of Nursing and Midwifery, Trinity College Dublin, 2017
Burke, E., McCarron, M.,, An exploration of the bone health of older adults with an intellectual disability, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017
O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017
O'Dwyer, C., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Associated Factors of Behaviours which Challenge Among Older Adults with Intellectual Disability in Ireland, Research in Developmental Disabilities , 61, (10), 2017, p969-983
Burke, E; McCallion, P., Walsh, J.B., McCarron, M., An exploration of the bone health of older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 16, (2), 2017, p99 - 114
Burke, EA., Walsh, JB., McCallion, P. and McCarron, M., ONE SIZE DOES NOT FIT ALL, MAKING REASONABLE ADJUSTMENT TO FACILITATE THE ENGAGEMENT OF PEOPLE WITH INTELLECTUAL DISABILITY IN OBJECTIVE HEALTH ASSESSMENT., IASSIDD Congress, Melbourne, Australia, , Melbourne, Australia, 15th - 19th August, , 2016
Burke, EA., Carroll, R., Walsh, JB., McCarron, M., McCallion, P,, The Feasibility of Utilising Quantitative Ultrasound as a Method of Objectively Measure in Bone Status among Older Adults with Intellectual Disability., IASSIDD Congress, Melbourne, Australia,, Melbourne Australia, 15th - 19th August,, 2016
King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., O'Donovan, MA, Activities of daily living and transition to community living for adults with intellectual disabilities, Scandinavian Journal of Occupational Therapy, 24, (5), 2016, p357 - 365
Caoimhin MacGiolla, Phadraig., McCarron, M, Why do older adults with intellectual disabilities not wear dentures, 23rd iADH Congress in conjunction with SCDA 28th Annual Meeting, Chicago, 16th April, 2016
Burke, EA., McCarron, M.,Walsh, JB., Carroll, R and McCallion, P, Prevalence and predictors of osteoporosis risk among older adults with intellectual disability n Ireland, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016
Burke, E., McCallion, P., Walsh, JB., McCarron, M, The Bone Status of Adults with Intellectual Disability: Results from the Second Wave of IDs-TILDA, IAGG-ER 8th Conference, Dublin, 23rd April, 2015
Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Examining the bone health of older adults with intellectual disability, Irish Gerontological Society PhD Conference, Education Centre, Our Lady's Hopice, Harolds Cross, Dublin 6, 2015
Burke, EA., McCallion, P., Walsh, JB., McCarron, M, An investigation into the bone health and bone quality among older adults with an intellectual disability in Ireland., Annual Medical Conference, Irish Osteoporosis Society , Trinity College, 31st October, edited by Dublin , 2015
Burke, E., McCarron, M., Walsh, JB., McCallion, P, The feasibility of utilising quantitative ultrasound as a method of objectiviely measuring bone status among older adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015
O'Dwyer, M., Belton, A, Burke, E., Mulryan, N., Pekar, J., McCallion, P, McCarron, M., Henman, M, Antipsychotics in older people with ID: Prevalence and associated risks, IAGG-ER 8th Conference, Dublin, 25th April, 2015
MacGiolla Phadraig C., McCarron M. , Burke E., Cleary E., McGlinchey E., McCallion P., Nunn., J. , Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Journal of Public Health Dentistry, 75, (2), 2015, p101 - 108
Burke, EA., McCarron, M, The IDS-TILDA Study - An overview with focus on speech and language, Masterclass for speech and language master students, School of Speech and Language, Trinity College, 9th October, 2015
Mac Giolla, Phadraig C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in ireland, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015
Burke, E., McCarron, M., Swinburne, J., McGlinchey, E., Carroll, R., McCallion, P, What it's like to grow older: The ageing perceptions of people with intellectual disability in Ireland. , Journal of Applied Research in Intellectual Disability, 52, (3), 2014, p205 - 219
McCarron M, O'Dwyer M, Burke E, McGlinchey E, McCallion P, Epidemiology of epilepsy in older adults with an intellectual disability in Ireland: associations and service implications., American journal on intellectual and developmental disabilities, 119, (3), 2014, p253-60
MacGiolla Phadraig, C.M.G., Burke, E., Mccallion, P., (...), Nunn, J., Mccarron, M. , Dental attendance among older adults with intellectual disabilities in ireland , Special Care in Dentistry, 34, (6), 2014, p265 - 272
Burke, E., McCallion P., & McCarron, M., Advancing Years, Different Challenges: Wave 2 IDSTILDA Findings on the ageing of people with an intellectual disability, Trinity College, September, 2014, p1 - 178
Burke E, McCarron M, Carroll R, McGlinchey E, McCallion P, What it's like to grow older: the aging perceptions of people with an intellectual disability in Ireland., Intellectual and developmental disabilities, 52, (3), 2014, p205-19
McGlinchey E, McCallion P, Burke E, Carroll R & McCarron M, Exploring the issue of employment of adults with an intellectual disability in Ireland., JARID, 26, (4), 2013, p335-43
McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756
Burke, E., McCarron, M., McCallion, P. , The Silent Thief of Bone: Developing a baseline picture of the bone health of adults with an intellectual disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013
McCallion, P., Burke, E., Swinburne, J., McGlinchey, E., Carroll, R., McCarron, M, The influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., The Health Well, 4, 2013, p749 - 756
McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343
Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013
McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527
Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.]
McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013
McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012
McCallion, P., Burke, E., McCarron, M., Hopes for the Future: The impact of caring for a family member with an Intellectual Disability who is ageing., IASSID World Congress, Halifax, Canada, July 2012, 2012
Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., I'm Not Ready Yet: What people with an Intellectual Disability say about growing older and retirement in Ireland., IASSID World Congress, Halifax, Canada, July, 2012
McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012
Non-Peer-Reviewed Publications
Dr Eilish Burke, Exploring Health Dynamics: Insights from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)., Launch of the Rosemary Collaboration Project, University of Limerick, Feb 28th 2024, 2024, University of Limerick
Dr Eilish Burke, 'Health and intellectual disability', Access All Areas, 92.5 Phoenix Fm, 2024, -
Louise Lynch, Uncovering sedentary behaviour: a comprehensive exploration of patterns and health effects among older adults with an intellectual disability, PhD Trinity College Dublin, 2023
Dr Eilish Burke, Osteoporosis and falls among adults with intellectual disability: What the IDS-TILDA study tells us., Bone Health and Frailty Awareness Week, Stewarts Care Ltd., Oct 23rd 2023, 2023, Stewarts Care Ltd
Dr Eilish Burke, Transforming Futures and Enhancing Lives: Harnessing Data from The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing to drive policy and influence change., Launch of GRASP for Positive Ageing Gheel, Marine Hotel Sutton, DEc 5th 2023, 2023, Positive Ageing Committee, Gheel Autism Services
Dr Eilish Burke, Ageing with an Intellectual Disability, implications for policy and practice: Lessons from The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Best Practice in Intellectual Disability Nursing Conference 2023, Mercy University Hospital Cork, Nov 21st 2023, 2023, Nursing and Midwifery Planning & Development Unit, Cork & Kerry
McCarron, M., Mc Causland D., Wormald, A., McGlinchey, E., MacGiolla Phadraig, C., Brennan, D., and Burke, EA, Longitudinal Dynamics in the Ageing of People with an Intellectual Disability: Evidence from IDS-TILDA, Data and Knowledge Sharing and Dissemination, Department of Children, Equality, Disability, Integration and Youth, Dec 8th 2023, 2023, IDS-TILDA and Department of Children, Equality, Disability, Integration and Youth
McCarron, M, Burke, E-A. & Wormald, A., Building a Better Future for People Ageing with an Intellectual Disability - The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing., Trinity Centre for Ageing and Intellectual Disability/Brother's of Charity Services Ireland Synposium., The Clarion Hotel, Steamboat Quay, Dock Rd, Limerick City., 29th September 2023, 2023
Burke, EA., Bone Health for Life: Accosting the Silent Thief, Geriatric Care Conference 2021, Online, September 23rd 2021, 2021, CMG Events
Burke, EA. and Foran, S., Understanding the fall event, fear of falling the invisible risk and falls assessment a practical approach., Falls Management Conference , Online, October 6th 2021, 2021, CMG Events
Darren McCausland, Andrew P. Allen, Margaret Haigh, Fintan Sheerin, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Niamh Mulryan, Philip McCallion and Mary McCarron, Overcoming Adversity: The Continuing Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland. Findings from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) COVID-19 Sub-Study, Trinity College Dublin, December, 2021
EA Burke, End of Life and Palliative Care for People with Intellectual Disability, Dying Matters, Lets talk about it, School of Nursing and Midwifery Queen's University Belfast, December 2nd 2021, 2021, School of Nursing Queens University
McCarron, Mary; McCausland, Darren; Allen, Andrew; Luus, Retha; Sheerin, Fintan; Burke, Eilish; McGlinchey, Eimear; Flannery, Fidelma; McCallion, Philip, The impact of COVID-19 on people ageing with an intellectual disability in Ireland, Dublin, December, 2020
McMahon, G and Burke, É., Oral Health Challenges for Individuals with Dementia in Long Term Care and Community Care: A Literature Review, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020
McCarron, M., McCausland, D., Allen, A.P., Luus, R., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F., & McCallion, P., THE IMPACT OF COVID-19 on People Ageing with an Intellectual Disability in Ireland 2020 - Evidence from Wave 4 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Dublin, December, 2020
xxx, xxx, 2018
McCarron M, Sheerin F, Roche L, Ryan A M, Griffiths C, Keenan P, Doody O, D'Eath M, Burke E and McCallion P., Shaping the future of Intellectual Disability Nursing in Ireland., Dublin, Health Services Executive, 2018, p1 - 150
McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage
Prof Mary McCarron and Dr Eilish Burke, Working wiht people with intellectual disabilities and their families - practical strategies and not just words, Do Nothing About Me Without Me:Public and Patient Involvement Demystified, Durkan Lecture Theatre, Trinity Translational Medicine Institute, Trinity Centre, St. James Hospital, 19th May, 2017, International Clinical Trials Day Symposium
Burke, EA., Understanding the bone health of older adults with an intellectual disability, 2017 Summit on Ageing and Intellectual Disability, Trinity College Dublin Ireland, 20th September 2017, 2017
Burke E., and Keating L., Supporting people with an intellectual disability to be an active participant in their own health; , Frontline, (105), 2017
Burke, E., McGlinchey, E., O'Dwyer, M., Foran, S., MacGiolla Phadraig, C., O'Connell,J., Ryan, J., Carroll R. and McCarron, M, Physical Health Prevalence and incidence of chronic health conditions across 10 years IN: Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), Trinity College Dublin, 2017, p58 - 85
Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God
Burke, E., McCarron M and McCallion P, Supporting Public and Patient Involvement in Research , Using IDS-TILDA as an example for true patient and public involvement (PPI), EIT Health/ACM SIGCHI e-Health Summer School 2017, Trinity College Dublin, June 2017, 2017
Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear McGlinchey, Mary-Ann O'Donovan, Darren McCausland, Fintan Sheerin, Maire O'Dwyer, Sinead Foran, Caoimhin MacGiolla Phadraig, Niamh Mulryan, Juliette O'Connell and Judy Ryan., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3 IDS-TILDA, Trinity College Dublin, 2017
Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017
Burke, E., McCarron, M, Bone health and older adults with intellectual disability., Research Study Day, Dublin, November, 2016, Daughters of Charity
McDermott, Aoife, A descriptive quantitative study examining the prevalence of constipation in older adults with intellectual disabilities in Ireland, Trinity College Dublin, 2016
Burke, E & O'Donovan, MA , Lessons learnt from Wave 1 and Wave 2 of the Intellectual Disability Supplement to the Irish Longitudinal Study of Ageing - IDS-TILDA. , UCD, School of Psychology, September , 2016
McCarron, M., Burke, EA. & O'Dwyer, M. , Findings and Policy Implications of the IDS-TILDA study. An address on ageing and intellectual disabilities to the Joint Oireachtas Committee on Health and Children, Contributed to the preparation of submission documents on Ageing and Intellectual Disability to the Oireachtas Health Committee, 2015, 2015
McGlinchey, E., McCausland, D., Burke, EA., Carroll, R., O'Donovan, MA., Mulryan, N., Shivers, C., O'Dwyer, M., McCallion P and McCarron, M., Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an intellectual disability. An Accessible Report, Accessible version, Trinity College Dublin, The University of Dublin Trinity College, 2015
Burke, EA., McCallion, P. and McCarron M. , Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an intellectual disability. Dublin: School of Nursing & Midwifery, Trinity College Dublin., Trinity College Dublin, The University of Dublin Trinity College, 2015
Burke, EA. , 'Investigating osteoporosis among adults with intellectual disability', Innovation Academy , Trinity College Dublin, 2015, -
Burke, EA., McCarron, M, Unlocking the determinants of ageing and bone health among adults with an intellectual disability, Disability Research Seminar, Dublin, 3rd November, 2015
Burke, EA., McCarron, M, The lives and needs of older people with learning disabilities in Ireland, The BILD 2015 International Ageing Well Research and Practice Conference, Aston University, Bermingham, 4th December, 2015
Burke, EA.,, Health, well-being and community participation: IDS-TILDA, Camphill Community National Conference, Kilkenny, July, 2015
Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear Cleary, Darren McCausland, Eimear McGlinchy, Mary Ann O'Donovan, Niamh Mulryan, and Carolyn Shivers, Advancing Years, Different Challenges: Wave 2 IDS-TILDA. Findings on the ageing of people with an intellectual disability., Dublin, 2014
Burke. EA., McCallion, P. and McCarron, M. , Bone health and people with Intellectual Disability. A Comprehensive Approach to Health and Health Care for People with Intellectual Disabilities as they Age,, IASSIDD Academy on Education, Teaching, and Research, European Congress, University of Vienna, Austria, 2014, International Association for the Scientific Study of Intellectual and Developmental Disabilities Academy
Burke, EA. , The changing health profile of adults with intellectual disability: Results from Wave 2 IDS-TILDA, National Disability Authority , Dublin, 2014
McCarron, M., McGlinchey, E., Burke EA. & McCallion P., 'Scenes from Our Lives ', Trinity College Dublin, 2014, -
McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , The Physical and Behavioural Health of Older adults with an Intellectual Disability in Ireland 2011: First results from IDS-TILDA, Irish Nurses and Midwives Organisation Education Day, Dublin, December 2011, 2011
McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011
McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , Growing Older with an Intellectual Disability in Ireland, First results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing -An Accessible Report. , Accessible version, Trinity College Dublin, 2011
Research Expertise
Projects
- Title
- Building Circles of Support for people with intellectual disabilities
- Summary
- The overall aim of the project is to use research information to develop resources to enhance the Circles of Support (COS) for adults with intellectual disabilities that can be used in person-centred planning processes.
- Funding Agency
- HRB
- Date From
- Sept 2022
- Date To
- Sept 2023
- Title
- Pilot feasibility study on the use of Echolight bone screening device in people with intellectual disabilities
- Summary
- Osteoporosis is a significant concern among individuals with intellectual disabilities. The prevalence of this condition is much higher and presents at an earlier age for people with intellectual disability than adults in the general population, yet research indicates inadequate attendance for diagnostic screenings such as DXA. This study aims to evaluate the viability of using an alternative bone health assessment system, namely the Echolight. The Echolight stands as an innovative technology utilising REMS (Radiofrequency Echographic Multi-Spectrometry) to measure bone mineral density.
- Funding Agency
- NMPDU, South East
- Date From
- Jan 2024
- Date To
- Dec 2024
- Title
- Exploring the unmet needs of Irish cancer patients from underserved communities
- Funding Agency
- Irish Cancer Society
- Date From
- March 2024
- Date To
- Feb 2025
- Title
- Intellecutal Disability Supplement to the Irish Longitudinal Study on Ageing Wave 5
- Summary
- IDS-TILDA, a longitudinal study, collates the health and wellbeing characteristics of people with an intellectual disability as they grow older. Thus far results emerging from this important study are contributing to policy practice and teaching development.
- Funding Agency
- HRB and Department of Health
- Date From
- November 1st 2021
- Date To
- December 31st 2024
- Title
- Get Wise About Your Health: COVID 19 Costed Extensions Fund
- Summary
- Due to the pandemic, the team were not able to engage directly with the participants as planned via service providers and focus group interviews. Lockdown occurred at the time when the team were planning to visit homes and residences. The team, therefore, changed the methods of engagement with the participants. This, however, created two challenges which contributed to further delays. Firstly, as this was a change in methodology, the ethics applications from each service had to be amended and resubmitted. Secondly, individuals with intellectual disability were predominantly unfamiliar with online engagement or online interviews. The team needed to promote this type of engagement. This involved building familiarity with the online experience; establishing the skill, devices and broadband connection of each participant; and working with carers to support activity before interviews could take place. The actual interview process had to be remodelled as the team were initially using focus group techniques with themes and concepts, which were switched to a direct one-to-one format. This grant is to support completion of the project.
- Funding Agency
- HEA Covid Support
- Title
- Investigation of constipation and its severity among adults with intellectual disability
- Summary
- The aims of the study are two-fold. Firstly, a cross-sectional approach will identify factors which contribute to the severity of constipation or its amelioration. Secondly, a longitudinal approach examining constipation severity over time will identify factors associated with increasing or decreasing severity with a view to determining whether constipation severity is progressive in this population.
- Funding Agency
- School of Nursing and Midwifery
- Date From
- June 2023
- Date To
- Sept 2023
- Title
- EQUIP: Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities
- Summary
- Examining the quality and trends of psychotropic use of older adults with intellectual disability over a ten year period in Ireland to inform practice and policy and to optimise medicines use and health outcomes.
- Funding Agency
- Health Research Board
- Date From
- Dec 2021
- Date To
- May 2024
- Title
- Development of OPTIMA-ID: Optimising Pharmaco-Therapy and Improving Medication for Ageing with Intellectual Disability
- Summary
- Developing an evidence-based tool: OPTIMA-ID (Optimising Pharmaco-Therapy and Improving Medication for Ageing with Intellectual Disability) to guide medicines optimisation.
- Funding Agency
- Dean's Research Fund
- Date From
- Sept 2021
- Date To
- Sept 2022
- Title
- Get Wise to your health 2: supporting people with an intellectual disability to get health savvy
- Summary
- This project continues the developement of online educational specifically designed with adults with intellectual disability for adults with intellecutal disability. Again the aim is to co-create and co-produce an accessible health educational programme with people with intellectual disability to support them understand and develop the skills that contribute to promoting their own health. This second phase will also include the addition of a downloadable app enabling people access the programme anytime anywhere.
- Funding Agency
- EIT Health
- Date From
- Jan 2021
- Date To
- Dec 2021
- Title
- People with Intellectual Disability as Physical Activity Leaders Part 2PPALs 2
- Summary
- Physical Activity Leader Project (P-PALs) is a programme promoting older adults with intellectual disabilities (ID) to take a leadership role in promoting physical activity among their peers. Phase 1 was developed using EIT Health Campus funding. P-PALs 2 bolster the scalability and sustainability of the programme, using learnings from the first phase.
- Funding Agency
- EIT Health
- Date From
- Jan 2020
- Date To
- Dec 2020
- Title
- My health starts with me, the 'how to' of research with people with intellectual disability; Building a toolkit to promote the voice of people with intellectual disability in health research
- Summary
- The aim of this project is to develop a toolkit to enable people with ID to engage genuinely and meaningfully in health research as co-producers and co-creators. Healthcare research shapes and determines the healthcare landscape; by being partners in research, people with ID are empowered to shape the healthcare agenda.
- Funding Agency
- HRB
- Date From
- June 2019
- Date To
- Oct 2019
- Title
- Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing Wave 4
- Summary
- IDS-TILDA now enters its fourth wave of data collection having celebrated its tenth year with the launch of Wave 3. It continues to collate data to determine the health and well-being characteristics of people with intellectual disability as they grow older however now has sufficient longitudinal data to begin to examine causation. Thus far the results emerging from this important study are contributing to policy, practice and teaching, enriching the lives of people with an intellectual disability as they grow older.
- Funding Agency
- Health Research Board; Department of Health
- Date From
- 2018
- Date To
- 2021
- Title
- People with Intellectual Disability as Physical Activity Leaders (P-PALS)
- Summary
- P: PALS - People with intellectual disability: Physical Activity Leaders An EIT Health Funded Project within the Citizen Engagement stream Aim The aim of this project is to design and pilot a programme to enable people with intellectual disability (ID) to become physical activity leaders (PALs) in their community. Partners This is a cross country collaborative project. Led by Trinity College Dublin (represented by the Intellectual Disability Supplement to TILDA (IDS-TILDA) and the TCD Sports Centre), the project will be implemented in collaboration with Age & Opportunity and the University of Barcelona. The two locations, Ireland and Spain, have been selected to enable a cross-country comparison. It allows for the delivery of a practical programme in two different service contexts, cultural contexts and languages, providing a different perspective for both countries - both, however, with a shared vision of access to and participation in sport, leisure, art, cultural and other activities as a central component of how citizens with ID engage in society and achieve a sense of community belonging. The IDS-TILDA study provides longitudinal research data on the health and ageing experience of older people with an intellectual disability in addition to expertise in engaging older people with intellectual disability in research. The TCD Sports Centre is the lead sports partner, with experience catering for diverse populations and providing an ideal city centre location that will facilitate accessibility and ease of access for participants. The University of Barcelona brings extensive research in the area of physical activity for people intellectual disability and this is complemented by the established and successful leader programme, Go for Life, for older people in the general population in Ireland run by Age & Opportunity. Current Programme The proposed training programme serves to empower older people with intellectual disability to be more physically active, improve functional mobility and also to lead their peers in physical activity. The newly developed course will be piloted in a 6-week programme in Trinity College Dublin Sport Centre in January and February 2018 (with one session per week) and aims to attract 12 participants with ID and 6 support workers (one support worker from each ID service centre). These trained leaders with ID will then lead up to 6 people in their own centres using a 5-week training programme. Programme implementation will occur concurrently in Ireland and Spain, with evaluation of the programme produced mid-way and upon full completion of the programme. Collaboration, as proposed with P-PALs, facilitates the enhancement of the mainstream agenda for people with disabilities, to ensure equal and equitable participation in society, but informs the mainstream physical activity programme with regard to increasing numbers of the general older population facing cognitive decline. It also fulfils the ageing sector's goal to present the ageing experience as a heterogeneous one requiring a multitude of diverse policy and service responses.
- Funding Agency
- EIT Health
- Date From
- December 2017
- Date To
- Dec 2018
- Title
- Improving Health Assessments for People with an Intellectual Disability
- Summary
- For the first time in history, people with an intellectual disability are living well into old age. This success story is a result of improved health care, better living conditions, access to education, and community supports. Despite this success, the life expectancy of a person with an intellectual disability is nearly 20 years less than their non-disabled peers. For decades, health and health care inequalities among people with an intellectual disability have been an issue, due to inaccessible healthcare information and service provision. These challenges can increase exclusion from preventative screenings, delay regular health assessments, impact on quality of life, and further marginalise people with an intellectual disability. This MOOC, a free three-week online course, will explore how to improve health assessments for people with an intellectual disability. Learners will explore best practice techniques for communication, assessment, and developing accessible materials for people with an intellectual disability. It is hosted on the FutureLearn platform.
- Funding Agency
- EIT Health
- Date From
- September 2017
- Date To
- Feb 2018
- Title
- End of Life, Glancing Back Thinking Forward
- Summary
- Development of a Palliative Care Support hub for people with intellectual disability, their families and carer's/support workers
- Funding Agency
- The AIIHPC Palliative Care Research Network
- Date From
- Feb 2017
- Date To
- June 2017
- Title
- End of Life Care
- Summary
- Palliative and end of life care for older adults with intellectual disability in Ireland, through a social justice lens, in association with the IDS-TILDA study end of life experiences were explored.
- Funding Agency
- AIIHPC
- Date From
- Jan 2013
- Date To
- Dec 2016
- Title
- NUTRILIT- ID: Empowering Health Literacy and Nutrition Education for Adults with Intellectual Disability
- Summary
- There is a growing population of adults with intellectual disability [ID] who are reaching older age. However, for adults with ID, multimorbidity, higher prevalence of poor health, and different patterns of disease are significant and health disparity which has been described as a `cascade" is frequently experienced. These disparities include lack of health care access, lack of education, higher levels of poorer health, lack of communication augmentations and lack of reasonable adjustments to provide equity and support individuals engage meaningfully in their own health. Yet targeted health information and educational campaigns are largely missing though recognized as key in supporting healthy, happy ageing Compounding these difficulties are high rates of illiteracy and communication challenges. The goal for this project is to develop an online educational course on eating well to improve health for those with intellectual disability.
- Funding Agency
- Pfizer
- Date From
- Dec 2023
- Date To
- Dec 2024
- Title
- A Blueprint of CAre for MENopause: CARMEN
- Summary
- This study aims to co-create a blueprint of care for menopause with all women who have experienced or are experiencing menopause. Public Patient Involvement (PPI) is integrated from the beginning, and each project within the study will contribute to the development of a Digital Health Solution for CAre at MENopause (CARMEN) accessible to all women. A participatory mixed methods design will be employed, integrating quantitative and qualitative approaches. The study aims to address four key research questions that inform the blueprint of care for menopause. Each PhD candidate will follow a structured framework to support their research, including research question development, evidence building through systematic/scoping literature reviews, convening a public and patient involvement (PPI) panel, engaging in collective intelligence activities with the PPI panel and field experts, planning ethics, recruitment, and data collection, analysing data, and writing their theses.
- Funding Agency
- TCD
- Date From
- 2023
- Title
- Rosemary Collaboratory: Leveraging Research and Advocacy to Make Health Systems More Inclusive of People with Intellectual Disabilities: Ireland
- Summary
- An interdisciplinary Irish team from across four universities, UL, TCD, DCU, RCSI, working with Special Olympics Ireland, in response to the RFP Rosemary Collaboratory: Leveraging Research and Advocacy to Make Health Systems More Inclusive of People with Intellectual Disabilities. To ultimately improve health access and outcomes for people with intellectual disabilities (ID) in Ireland, this proposal outlines our intentions to comprehensively assess Ireland"s public healthcare system"s inclusiveness for people with ID to inform the development and implementation of an advocacy and system improvement plan.
- Funding Agency
- Special Olympics International
- Title
- CArdiovascular Risk Assessment via multimodal data analysis enabling personalized prevention strategies targeting MEnopausaL women (CARAMEL)
- Summary
- A multinational collaborative European project intending to investigate CVD among women 40 - 60 including marginalised women (ie those with intellectual disability). The team aims to create a novel effective strateification scheme for CVD personalised prevention for women.
- Funding Agency
- Horizon EU
Recognition
Representations
Head of the Intellectual Disability Discipline
Special Olympics Global Curriculum Advisory Panel
Core team member of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing; Leading the Physical Health Theme
Member of the Scientific Advisory Board and Steering Committee to IDS-TILDA
Academic Advisor for the Positive Ageing Steering Committee, Gheel Services
Member of the Trinty Centre for Ageing and Intellecutal Disability (TCAID) Executive Management Committee, and Operations Committees
Member of the Intellectual Disability Discipline and undergraduate course curriculum committee
Member of the School of Nursing and Midwifery Research Committee
Member of the Scholars Committee School of Nursing and Midwifery
Member of the HSE Quality Improvement Committee
External Examiner to the Intellectual Disability Programme Queens University
Member of the special Interest Research Group Ageing IASSID
Member of the Special Interest Research Group Health IASSID
Member of Healthy Campus Health Trinity Group
Course Coordinator for the Masters in Ageing Health and Wellbeing in Intellectual Disability
Course co-ordinator representative and member of the post graduate course committee, School of Nursing and Midwifery, TCD
Course co-ordinator representative and member of the postgraduate management committee, School of Nursing and Midwifery, TCD
Chair of the Masters in Ageing and ID Curriculum Development Committee
Academic representative on the e-Learning college working group.
Faculty of Health and Sciences Academic Representative on the Trinity Education and Learning College Review Committee.
Faculty of Health Academic represetative on INDEx - National Digital Experience Survey 2019
Awards and Honours
Winner of the Inagural School of Nursing and Midwifery Impact Case Study
Nominated for the Trinity Excellence in Research Supervision
Nominated for the Trinity Excellence in Teaching Award
Winner of the International Association for Research on Service-Learning & Community Engagement Diversity Equity and Inclusion Award
Nominated and Shortlisted for Trinity Civic Engagement Award
Innovation in Teaching Dean's Award
Dean's Research Award 2017
Winner of the Trinity College Postgraduate of the Year Showcase 2016
Winning juried SIRGAIDD Award for best student poster at the Boston roundtable of the IASSIDD special interest group on ageing with an intellectual disability.
Memberships
Member of the Project oversight group/ Trial Steering Committee of the Matilda Project. Ulster University, Nth. Ireland
Academic advisor to Positive Ageing Committee, Gheel Autism Services
Ethics Committee Member, Camphill Communities of Ireland, Services for Adults with Intellectual Disability
Member of the Scientific Advisory Board to The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing
Member of the International Osteoporosis Foundation
Member of the Irish Osteoporosis Society
Member if the International Association for the Scientific Study of Intellectual and Developmental Disabilities
Member of the Steering Committee to The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing
Member of the 'Healthy Campus Healthy Trinity Group'
Member of the Irish Gerontological Society