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Ball, S, Harshfield, A, Carpenter, A, Bertscher, A. and Marjanovic, S (2019) Patient and public involvement in research: Enabling meaningful contributions. Santa Monica, CA: RAND Corporation, 2019. .

Concannon TW, Meissner P, Grunbaum JA, McElwee N, Guise JM, Santa J, Conway PH, Daudelin D, Morrato EH, Leslie LK. (2012) A new taxonomy for stakeholder engagement in patient-centered outcomes research. J Gen Intern Med. 2012;27:985–91.

Deverka PA, Lavallee DC, Desai PJ, Esmail LC, Ramsey SD, Veenstra DL, et al. (2012) Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement. J Comp Eff Res. 2012;1(2):181–94.

Pandya-Wood, R, Barron, DS & Elliott, J (2017) A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards. Research Involvement and Engagement 3, 6.