Dr. Eimear Mc Glinchey

• Mac Giolla, Phadraig C., El-Helaali, R., Nunn, J H., Burke, E., McCallion, P., McGlinchey, E., McCarron, M , National levels of reported difficulty in tooth and denture cleaning among an ageing population with intellectual disabilities., 15, (3), 2014, p48 - 53Journal Article, 2014, DOI
• McGlinchey, E., McCallion, P., McCarron, M, Cognitive reserve: Implications for research in dementia for people with down syndrome, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015Poster, 2015
• McGlinchey, E., McCarron, M., McCallion, P, Cognitive reserve: Implications for research in dementia for people with down syndrome, IASSID, Vienna, July, 2014Poster, 2014
• McGlinchey, E., McCarron, M., McCallion, P, Examining the usefulness of measures of executive function in individuals with down syndrome: A comparative review, IASSID, Vienna, July, 2014Poster, 2014
• McGlinchey, E., McCarron, M., McCallion, P, Findings in relation to change in EF scores, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016Oral Presentation, 2016
• Burke E, McCarron M, Carroll R, McGlinchey E, McCallion P, What it's like to grow older: the aging perceptions of people with an intellectual disability in Ireland., Intellectual and developmental disabilities, 52, (3), 2014, p205-19Journal Article, 2014, DOI
• McGlinchey, E., McCarron, M, Cognitive Training with Adults with Down syndrome, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017Oral Presentation, 2017
• Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Communication-based behavior support for adults with intellectual disabilities receiving dental care: A focus group study exploring dentists' decision-making and communication., Journal of Intellectual Disability Research, 23, (4), 2019, p526 - 540Journal Article, 2019
• McCarron, M., O'Dwyer, M., Burke, E., McGlinchey, E., McCallion, P., Epidemiology of Epilepsy in Older Adults with an Intellectual Disability in Ireland, American journal of intellectual disabilities, 2014, p253 - 260Journal Article, 2014, DOI
• The Test for Severe Impairment in, Neuropsychological Assessments of Dementia in People with Down syndrome and Intellectual Disabilities, 2017, [McCarron, M., Carroll, R., Mulryan, N., Reilly, E., Dunne, P., McGlinchey, E., McCallion, P., ]Book Chapter, 2017
• MacGiolla Phadraig, C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults , Special Care in Dentistry, 2014Journal Article, 2014, DOI
• McGlinchey, E., McCarron, M., McCallion, P, Conducting a feasibility study on cognitive training with adults with Down syndrome: Methodology and lessons learned, 2016 IASSIDD World Congress, Melbourne, 1519 August 2016, 2016Oral Presentation, 2016
• McGlinchey, E., McCarron, M., McCallion, P, Examining the relationship between cognitive reserve and levels of executive function: Results from the BEADS study, 2016 IASSIDD World Congress, 15-19 August 2016, 2016Oral Presentation, 2016
• McGlinchey, E., McCarron, M., McCallion, P, Conducting a feasibility study on cognitive training with adults with Down syndrome: Methodology and lessons learned, 2016 IASSIDD World Congress, Melbourne, 15-19 August 2016, 2016Oral Presentation, 2016
• McGlinchey, E., McCarron, M., McCallion, P, The impact of Cognitive Training on Executive Function in Adults with Down syndrome, 2016 IASSIDD World Congress, Melbourne, 15-19 August 2016, 2016Oral Presentation, 2016
• McGlinchey, E., McCallion, P., Carroll, R., Burke, E., McCarron, M, Behavioural Health of Older Adults wiht an Intellectual Disability: Findings from the Intellectual Disability, Interdisciplinary Research Conference, Optimising Health in the 21st Century, 2012Oral Presentation, 2012
• McGlinchey, E., McCallion, P., Carroll, R., Burke, E., McCarron, M, Behavioural Health of Older Adults wiht an Intellectual Disability: Findings from the Intellectual Disability, 2012 IASSIDD World Congress , Halifax, Canada, 2012Oral Presentation, 2012
• McGlinchey, E., Carroll, R., McCarron, M., McCallion, P, The importance of learning and employment opportunities in social development and well being of older adults wiht an intellectual disability in Ireland, IDS@UL, 2012, 2012Oral Presentation, 2012
• McGlinchey, E., Carroll, R., McCarron, M., McCallion, P, An Exploration of the Employment Status of people over forty with an Intellectual disability in Ireland, Irish Gerontology Society Conference, University College Cork, 2012Oral Presentation, 2012
• Ouellette-Kuntz, H., Martin, L., Burke, E., McCallion, P., McCarron, M., McGlinchey, E., Sandberg, M., Schoufour, J., Shooshtari, S., Temple, B, How best to support individuals with IDD as they become frail: Development of a Consensus Statement, Journal of Applied Research in Intellectual Disabilities , 32, (1), 2018, p35 - 42Journal Article, 2018, URL
• Overview of the Important Physical Health Concerns in, editor(s)Vee P. Prasher and Matthew P. Janicki , Physical Health of Adults with Intellectual Disabilities, Springer Nature, 2018, [Burke, E.A., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P. and McCarron, M]Book Chapter, 2018, DOI
• Ageing with Intellectual Disability: Dementia and Cognitive Decline in, editor(s)J. Matson , Handbook of Dual Disorders, Springer Link, 2020, pp311 - 330, [Sheerin F, McCallion P, McGlinchey E, O'Dwyer M, Reilly E, McCarron, M ]Book Chapter, 2020
• McGlinchey, Eimear; McCarron, M., Holland, AJ., McCallion, P , Examining the effects of computerised cognitive training on levels of executive function in adults with Down syndrome, Journal of Intellectual Disability Research, 63, 2019, p1137 - 1150Journal Article, 2019, DOI
• McGlinchey, E., McCallion, P,, McDermott, S., Foley, M., Burke, E.A., O'Donovan, M-A., McCausland, D., Gibney, S., McCarron, M. , Positive Ageing Indicators for People with an Intellectual Dsiability 2018, Dublin: Trinity Centre for Ageing and Intellectual Disability, 2019Report, 2019, URL
• McGlinchey, E., McCallion, P. & McCarron, M., Inclusion of people with Down syndrome in dementia research: Awareness, engagement and attitudes., Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019Oral Presentation, 2019, DOI
• McGlinchey, E., McCallion, P., McCarron, M., Down syndrome and Dementia: Advances in the field, Current Opinion in Psychiatry, 33, (3), 2020, p278 - 283Journal Article, 2020, DOI
• Dementia and Intellectual Disability: Prevalence, Assessment and Post-Diagnostic Support in, editor(s)Johnny Matson , Handbook of Intellectual Disabilities, Springer , 2019, pp965 - 986, [Eimear McGlinchey, Evelyn Reilly, Philip McCallion, Pamela Dunne, Niamh Mulryan, Mary McCarron]Book Chapter, 2019, URL
• Young,P., Estarella, M., Coomans, E., Srikrishna, M., Beaumont,H., Maass, A., Venkataraman, A., Lissaman,R., Jiménez, D., Betts, M.J., McGlinchey, E., Berron, D., O'Connor,A., Fox, N., Pereira, J., Jagust, W., Carter, S., Paterson, R., Schöll, M., Imaging Biomarkers in Neurodegeneration: Current and Future Practices, Alzheimer's Research and Therapy , 12, (49), 2020Journal Article, 2020, DOI
• Roe, L., Galvin, M., Booi, L., Brandao, L., Salas, J. L., McGlinchey, E., & Walrath, D., o live and age as who we really are: Perspectives from older LGBT+ people in Ireland., HRB Open Research, 3, (6), 2020Journal Article, 2020, DOI
• McGlinchey, E., McCallion, P., McCarron, M., Developing National Positive Ageing Indicators for People with an Intellectual Disability in Ireland, JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, IASSIDD World Congress, Glasgow, August 2019, 63, (7), Wiley, 2019Oral Presentation, 2019, DOI
• McGlinchey, E., McCallion, P., McCarron, M., Developing National Positive Ageing Indicators for People with an Intellectual Disability in Ireland, JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, IASSIDD World Congress, Glasgow, August 2019, 63, (7), Wiley, 2019Oral Presentation, 2019
• McGlinchey, E., McCallion, P., McCarron, M., Patterns of dementia and epilepsy in adults with Down syndrome in Ireland: data from IDS-TILDA, JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, IASSIDD European Congress, Athens, May 2018, 31, (4), Wiley, 2018, pp552 - 552Oral Presentation, 2018
• McGLinchey, E., Whelan, R., McCarron, M. , Dementia in People with Down syndrome: An Underrepresented Population, Engage Dementia , Croke Park, Dublin , May, 2019, 2019Oral Presentation, 2019
• McGlinchey, E., McCallion, P., & McCarron, M., Patterns of onset of dementia and epilepsy in adults with Down syndrome: Findings from IDS-TILDA., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
• Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Using Health Psychology Theory to inform research into Cognitive Decline in People with Intellectual Disability, Psychology, Health and Medicine , University College Cork, 12th-14th May 2021, 2021Poster, 2021, URL
• Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021Conference Paper, 2021, URL
• Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021Oral Presentation, 2021, URL
• McCarron, M., Allen, A., McCausland, D., Haigh, M., Luus, R., Bavussantakath, F.R., Sheerin, F., Mulryan, N., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey., HRB Open Research, 4, (95), 2021Journal Article, 2021, DOI
• McCarron, M., McCausland, D., Luus, R., Allen, A., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of coronavirus disease 2019 (COVID-19) on older adults with an intellectual disability during the first wave of the pandemic in Ireland, HRB Open Research, 4, (93), 2021Journal Article, 2021, DOI
• Boyle, R., Connaughton, M., McGlinchey, E., Knight, S.P., De Looze, C., Carey, D., Stern, Y., Robertson, I.H., Kenny, R.A. and Whelan, R, Connectome‐based predictive modeling of cognitive reserve, Alzheimer's & Dementia, 7, (S5), 2021Journal Article, 2021, DOI
• McCarron, M., McCausland, D., McGlinchey, E., Bowman, S., Foley, M., Haigh, M., Burke, E. & McCallion, P., Recruitment and retention in longitudinal studies of people with intellectual disability: A case study of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Research in Developmental Disabilities, 124, 2022Journal Article, 2022, DOI
• Chen, Yaohua Sophie and Beber, Bárbara Costa and Higgins, Dawn and Galvin, Miriam and Ilinca, Stefania and Lawlor, Brian and Leon, Tomas and Leroi, Iracema and McGlinchey, Eimear and Rogan, Carol and Saha, Sanjib and Tjin, Anna and O'Sullivan, Roger and CLIC†Caregivers Study Group, COVID†19†related loneliness and social isolation in caregivers of people with brain health challenges: The CLIC†Caregiver Global Survey, Alzheimer's & dementia : the journal of the Alzheimer's Association, 17, (Suppl 7), 2021Journal Article, 2021, DOI , URL
• Kirwan, R., Sheerin, F., McGlinchey, E., McCallion, P. & McCarron, M., Functional loss in older adults with intellectual disabilities and dementia, Learning Disability Practice, 2022Journal Article, 2022, DOI
• Boyle, R., Connaughton, M., McGlinchey, E., Knight, S.P., De Looze, C., Carey, D., Stern, Y., Robertson, I.H., Kenny, R.A. and Whelan, R, Connectome-based predictive modeling of cognitive reserve using task-based functional connectivity, bioRxiv, 2022Journal Article, 2022, URL
• Dennehy H., Allen A.P., McGlinchey E., Buttery N., Garcia-Dominguez L., Chansler R., Corr C., Dunne P., Kennelly S., Daly L. McCallion P. and McCarron M., A scoping review of post-diagnostic dementia supports for people with intellectual disability, Aging and Mental Health, 2022Journal Article, 2022, URL
• Wormald A, McGlinchey E, D'Eath M, Leroi I, Lawlor B, McCallion P, McCarron M, O'Sullivan R. & Chen Y., Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study., International Journal of Environmental Research and Public Health. , 20, (4), 2023Journal Article, 2023, DOI , TARA - Full Text
• Chen, Y.S., Almirall"Sanchez, A., Ilinca, S., Grycuk, E., Higgins, D., Leon, T., McGlinchey, E., Rogan, C., Saha, S., Tjin, A. and Galvin, M.,, COVID"19"related loneliness, social isolation and burden in informal caregivers worldwide. , Alzheimer's & Dementia, , 18, (S8), 2022Journal Article, 2022, DOI
• Attachment, Cognitive Dissonance and Reciprocation in Intellectual Disability Care Provision in, Intellectual Disabilities: Health and Social Care Across the Lifespan , 2023, [Jan De Vries & Eimear McGlinchey ]Book Chapter, 2023, DOI
• Allen, A-P., McGlinchey, E., Fallon, M., McCallion, P. & McCarron, M., Cognitive reserve and dementia risk management in people with an intellectual disability., International Journal of Geriatric Psychiatry, 2023Journal Article, 2023, DOI , TARA - Full Text
• Fallon, M.,McCallion, P., McCarron, M. & McGlinchey, E., An Exploration of Biopsychosocial Risk Factors for People Ageing with Down syndrome in Ireland, 5th International Conference of the Trisomy 21 Research Society, Rome, 5th - 8th June, 2024Oral Presentation, 2024
• McGlinchey, E., Kleinhans, A., Vava, B., Fortea, J., Advancing Equity for People with Down Syndrome in South Africa: An Atlantic Institute Initiative, Trsomy 21 Research Society International Conference, Rome, 5-8 June, 2024Oral Presentation, 2024
• Kibsgaard Larsen, F., Asaad Baksh, R.,McGlinchey, E., Melbye Langballe, E., Benejam, B., Beresford-Webb, J., McCarron, M., Coppus, A., Falquero, S., Fortea, J., Levin, J., V.Loosli, V., Mark, R., Rebillat, A-S., Zaman, S. & Strydom, A., Age of Alzheimer's disease diagnosis in people with Down syndrome and associated factors: Results from the Horizon 21 European Down syndrome consortium, The Journal of the Alzheimer's Association, 2024Journal Article, 2024, DOI , TARA - Full Text
• McGlinchey, E., Daly, L., Allen, A., Dennehy, H., Buttery, N., Corr, C., McCallion, P., Kennelly, S., Dunne, P., McCarron, M., Developing Best Practice Guidelines for Post-Diagnostic Dementia Support for People with an Intellectual Disability, 33rd Alzheimer Europe Conference, Helsinki, 16-18 October 2023, 2023Oral Presentation, 2023
• McGlinchey, E., Iulita, M. F., & Fortea, J., Compounded inequality: racial disparity and Down syndrome., The Lancet Public Health, 8, (11), 2023, p836 - 836Journal Article, 2023
• McGlinchey E, McCallion P, Burke E, Carroll R & McCarron M, Exploring the issue of employment of adults with an intellectual disability in Ireland., JARID, 26, (4), 2013, p335-43Journal Article, 2013, DOI
• McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756Journal Article, 2013, DOI , TARA - Full Text
• McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012Oral Presentation, 2012
• McGlinchey, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., Life Long Learning and Employment in Older Irish Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012Oral Presentation, 2012
• McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012Oral Presentation, 2012
• McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343Journal Article, 2013, DOI
• McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527Journal Article, 2013, DOI , TARA - Full Text
• Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.]Book Chapter, 2013, DOI
• McCarron, M., McGlinchey,E., Burke, E., O'Dwyer, M., McCallion, P., Epidemology of epilepsy in Older Adults with an Intellectual Disability, Irish Journal of Medical Science Volume 182 Supplement 6 DOI 10.1007/s11845-013-0985-z, 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September, 2013Poster, 2013
• McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013Oral Presentation, 2013
• Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013Conference Paper, 2013

• McCarron, M., Swinburne, J., Burke, EA., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion P. , Growing Older with an Intellectual Disability in Ireland, First results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing -An Accessible Report. , Accessible version, Trinity College Dublin, 2011Report
• McGlinchey, E., McCausland, D., McCarron, M., Burke, E., McCallion, P. , Advancing Years, Different Challenges: Wave 2 IDS-TILDA: An Accessible Report. , Dublin: Trinity College Dublin, 2014Report
• McCarron. ,M., McCallion, P., Carroll, R., Burke, E., McGlinchey, E., McCausland, D., Cleary, E., Shivers, C., Advancing Years, Different Challenges: Wave 2 IDS-TILDA, 2014Report
• McCarron, M., Burke, E., McGlinchey, E., McCausland, D., O'Dwyer, M., O'Donovan, M.A., McCallion, P., Value for Money and Policy Review of Disability Services in ireland, Value for Money and Policy Review of Disability Services in ireland, Hawkins House, 2015Oral Presentation
• Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear McGlinchey, Mary-Ann O'Donovan, Darren McCausland, Fintan Sheerin, Maire O'Dwyer, Sinead Foran, Caoimhin MacGiolla Phadraig, Niamh Mulryan, Juliette O'Connell and Judy Ryan., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3 IDS-TILDA, Trinity College Dublin, 2017Report, DOI , TARA - Full Text
• 2. McGlinchey, E., Burke, E., McCallion, P., Haigh, M., O'Donovan ,M., McCarron, M. , Health and Well-Being of Older Adults in St Joseph's Intellectual Disability Service: Baseline Report., Trinity Centre for Ageing and Intellectual Disability, Dublin, 2018Report
• McCarron, M., McCausland, D., Allen, A.P., Luus, R., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F., & McCallion, P., THE IMPACT OF COVID-19 on People Ageing with an Intellectual Disability in Ireland 2020 - Evidence from Wave 4 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Dublin, December, 2020Report, URL
• McCarron, Mary; McCausland, Darren; Allen, Andrew; Luus, Retha; Sheerin, Fintan; Burke, Eilish; McGlinchey, Eimear; Flannery, Fidelma; McCallion, Philip, The impact of COVID-19 on people ageing with an intellectual disability in Ireland, Dublin, December, 2020Report, DOI , URL , TARA - Full Text
• Marianne Fallon & Dr. Eimear McGlinchey, Promoting Brain Health Across the Lifespan: People with an Intellectual Disability, Learning Disabilities and Dementia Community of Practice meeting, Online- Wales, 15th July 2021, 2021, Rebecca Hamner, Public Health WalesInvited Talk
• Darren McCausland, Andrew P. Allen, Margaret Haigh, Fintan Sheerin, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Niamh Mulryan, Philip McCallion and Mary McCarron, Overcoming Adversity: The Continuing Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland. Findings from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) COVID-19 Sub-Study, Trinity College Dublin, December, 2021Report, DOI , URL , TARA - Full Text
• Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear Cleary, Darren McCausland, Eimear McGlinchy, Mary Ann O'Donovan, Niamh Mulryan, and Carolyn Shivers, Advancing Years, Different Challenges: Wave 2 IDS-TILDA. Findings on the ageing of people with an intellectual disability., Dublin, 2014Report
• Fallon, M., McGlinchey, E. & McCarron, M., Modifiable lifestyle factors associated with age of dementia diagnosis., Horizon 21 Consortium F2F Meeting., Munich, Germany., 15th - 16th June, 2023Oral Presentation
• McGlinchey, E., Bray, F., Fortea, J., Yap, M-L., Kennelly, S. & McCarron, M., Complex Joy: A Celebration of Brain Health in People with Down Syndrome, Creative Brain Week 2023, Science Gallery, Trinity College Dublin, 9th March, 2023Oral Presentation
• McCarron, M., Daly, L., McCallion, P., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., McGlinchey, E., Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability, 17, Trinity College Dublin, March, 2024Report, TARA - Full Text
• McCarron, M., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., Daly, L., McCallion P., McGlinchey, E., Voices of Experience: Building Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability. Brief Report, 5, Trinity College Dublin, January, 2024Report, DOI , TARA - Full Text
• McCarron, M., Mc Causland D., Wormald, A., McGlinchey, E., MacGiolla Phadraig, C., Brennan, D., and Burke, EA, Longitudinal Dynamics in the Ageing of People with an Intellectual Disability: Evidence from IDS-TILDA, Data and Knowledge Sharing and Dissemination, Department of Children, Equality, Disability, Integration and Youth, Dec 8th 2023, 2023, IDS-TILDA and Department of Children, Equality, Disability, Integration and YouthInvited Talk
• Eimear McGlinchey, Cognitive Reserve and Down syndrome, Alzheimer Association Cognitive Reserve and Down syndrome Professional Interest Area, 28/11/2023, 2023, Alzheimer AssociationInvited Talk
• McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011Report, DOI , TARA - Full Text

• Title

  Meaning in Life in Older Adults with Intellectual Disability: findings from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA).
  Summary
  Funding Agency

  Health Research Board
  Date From

  13/06/2022
  Date To

  12/08/2022
• Title

  Raising Awareness of Down syndrome in South Africa
  Summary

  We aim to better understand the situation for people with DS in SA, to plan how to address inequities as identified by them. To do this we will: - Hold workshops to: o Identify shared learning between Ireland, Spain and South Africa as well as wider global perspectives o Discuss the existing strengths in SA o Plan how best to include the voices of people with DS and their families o Address accessibility and consent issues - Engage the Down syndrome association of SA and other DS services - Co-develop next project stages
  Funding Agency

  Atlantic Institute
  Date From

  July 2023
  Date To

  July 2024
• Title

  Development of a Multimodal intervention framework for Alzheimer"s Disease in people with Down Syndrome
  Summary

  People with Down syndrome (DS) represent the world"s largest population with a genetic predisposition to Alzheimer"s disease (AD). Virtually everyone with DS has the neuropathology of AD by the age of 40, and yet this population have largely been excluded from both pharmacological and non-pharmacological trials in AD. The FINGER study has shown the effectiveness of non-pharmacological intervention in the general population, but has, up until now not included people with an intellectual disability. The MINDS working group aims to address this inequity through developing a multimodal intervention framework for AD in people with DS, targeting social and lifestyle factors with the aim of delaying cognitive decline and increasing quality of life in this population. Given the ubiquity of AD pathology in people with DS, early intervention could prevent or delay later complications. The intervention used in the general population needs to be adapted to take into account the unique needs of people with DS, including pre-existing intellectual disability, support structures and living arrangements. The MINDS working group will leverage existing connections of the Horizon 21 European Down syndrome Consortium and will establish networks with the WW FINGER study to develop this intervention framework. A collective intelligence approach will be used across two workshops in order to do this. People with DS and their family carers will inform and support the development of the intervention framework throughout the process, leading to the establishment of a Europe wide PPI network for brain health in people with DS. The resulting intervention framework will be available to the wider research community to support those working with this underserved population.
  Funding Agency

  Joint Partnership Neurodegenerative Research (JPND)
• Title

  PREVENT dementia -DS
  Summary

  This study will examine the effect of Alzheimer's disease pathology on the organisation of brain networks in people with Down syndrome compared to people in the general population who are at high risk of Alzheimer's disease and people who are at low risk of Alzheimer's disease. People with Down syndrome are at high risk of Alzheimer's disease (AD) because genetic reasons. However, they are typically excluded from Alzheimer's disease prevention research. Including people with Down syndrome in this type of research is important from an equity perspective and could also help us to understand the development and progression of Alzheimer's disease for all. The PREVENT study, is part of an international study examining early biomarkers of Alzheimer's disease in the general population in mid-life and before clinical stages of the disease. This pilot will adapt the PREVENT protocol so that it is suitable for people with Down syndrome. The neuroimaging, blood and neuropsychological data collected in this process will then be analyzed. The organisation of brain networks in people with Down syndrome who don't have any symptoms of Alzheimer's disease will be compared to people from the PREVENT study at high risk for Alzheimer's disease and at low risk for Alzheimer's disease. Neurofilament light protein is a protein that can be measured in the blood and has been found to be a reliable marker of Alzheimer's disease pathology in people with Down syndrome. The association between this protein in relation to the organisation of brain networks in people with Down syndrome will be examined. The relationship between the organisation of brain networks and scores on neuropsychological assessments will be examined. This will give us a better understanding of the early cognitive changes as a result of Alzheimer's disease in people with Down syndrome. Through establishing the adapted PREVENT protocol, this pilot will inform the development of a large national study - PREVENT dementia - DS.
  Funding Agency

  Alzheimer's Association, Alzheimer's UK, Global Brain Health Institute
  Date From

  01/09/2021
  Date To

  31/08/2022
• Title

  Including the Voices of Experience in Developing Accessible Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability
  Summary

  People with an Intellectual Disability (ID) are at greater risk of developing dementia than the general population. In particular, those with Down syndrome (DS) are the world's largest group with a genetic risk for Alzheimer's disease (AD), given overexpression of the amyloid precursor protein (APP) gene located on chromosome 21. Despite this high risk, services, both in the general population and ID specific services are ill prepared to provide post-diagnostic support to people with an ID and dementia and their carers, meaning unequal and inadequate access to supports for many across the country. There is currently little systematic research to guide development of post-diagnostic supports for people with ID. With its recent establishment, the National Intellectual Disability Memory Service (NIDMS) in Ireland will offer an accessible systematic approach to diagnosis, resulting in an increased need for post-diagnostic supports for people with ID. The aim of the study, therefore, is to develop accessible best practice guidelines for post-diagnostic dementia supports for people with an intellectual disability in Ireland. This will be achieved through: 1) Identifying current guidelines/recommendations on post-diagnostic dementia care nationally and internationally for the general population and for people with ID. 2) Understanding the current landscape of post-diagnostic dementia support for people with an intellectual disability in Ireland. 3) Understanding the lived experience of accessing and using post-diagnostic dementia support services for people with ID/DS and their families and desires for post-diagnostic services. 4) Identifying gold standard approaches/guidelines to post diagnostic dementia care from specialist ID service providers. The resulting guidelines will identify needed adjustments, and make recommendations for all services on how best to provide post-diagnostic dementia supports to people with ID and their families/carers.
  Funding Agency

  Health Research Charities Ireland
  Date From

  01/01/2021
  Date To

  01/11/2023
• Title

  IDS-TILDA
  Summary

  Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing Wave 5
  Funding Agency

  Health Research Board
  Date From

  01/11/2021
  Date To

  01/11/2024
• Title

  arly Biomarkers of Alzheimer's Disease in People with Down syndrome
  Summary

  People with Down syndrome (DS) have a genetic predisposition to Alzheimer's disease (AD) but have typically been excluded from AD prevention research. Including people with DS is important from an equity perspective and to provide insight into the development and progression of Alzheimer's disease. The PREVENT study, is part of an international study examining early biomarkers of AD in the general population in mid-life and before clinical stages of the disease. This pilot will adapt the PREVENT protocol so that it is suitable for people with DS, and will include people from 20-29, before the onset of AD pathology. Neuroimaging, blood and neuropsychological data collected will be analysed. Specifically, the organisation of brain networks in people with DS prior to the onset of AD pathology will be analysed and it's association with Neurofilament Light (NfL), a protein measured in blood examined. NfL has been found to be a reliable marker of AD pathology in people with DS. This study will give a better understanding of the earliest changes in the AD process in people with DS. Through establishing the adapted PREVENT protocol, this project will inform the development of a large national study - PREVENT dementia - DS.
  Funding Agency

  Deans Rersearch Initiative
  Date From

  01/07/2021

Other Health Sciences, Psychology and Behavioural Sciences, Population Health, Public & Environment Health, Health Care & Health Services (including Health Technology and Health Information Systems), Other Health Sciences, Neuroscience and clinical neurology, Psychology and Behavioural Sciences, Population Health, Public & Environment Health, Health Care & Health Services (including Health Technology and Health Information Systems), Neuroscience and clinical neurology,

• Journal Reviewer Journal of Intellectual Disability Research 2018-2020
• Reviewer for Research in Developmental Disabilities 2019-2020
• Reviewer for Journal of Applied Research in Intellectual Disabilities 2018-2020
• Journal reviewer for International Journal for Geriatric Psychiatry 2021
• Chair of LEAP Committee in School of Nursing and Midwifery 2022
• Journal reviewer for Intelligence 2022
• International Advisory Committee for Journal of Intellectual Disabilities
• Journal Reviewer Journal of Intellectual Disability Research 2018-2020
• Journal reviewer for Environmental Research and Public Health 2021
• Journal reviewer for Journal of Policy and Practice in Intellectual Disabilities 2021
• Reviewer for Research in Developmental Disabilities 2019-2020
• Journal Reviewer for Journal of Intellectual Disabllities
• Reviewer for Journal of Applied Research in Intellectual Disabilities 2018-2020
• Journal reviewer for Neurobiology of Ageing 2021
• Journal reviewer for Neurobiology of Ageing 2021